I actually just found out about this blog today. Sam and Anna have to be two of the most mature 17 and 16 year
olds I know....not to mention the best friends/sisters a girl could ever ask for.
Anyways once I found out they had done this I offered to blog once a week for it...a "notes from the momma" type thing. Just to keep you updated with what is going on from this end.
After a week straight with her in the hospital we both finally got to leave. I was able to bring her back to
Casa for one night before having to take her to a different home that had agreed to take her. I was struggling....I mean I can tell you what the names of every med she is on and when she needs to take it. Heck I even know what they each smell like. I know which
meds she hates and has to have mixed in with something else to get her to take it at all. I know the stubborn gleam she gets in her eye that means she isn't going to do anything you want her to until she decides to. I know what her mad cry sounds like...her hurt cry...her scared cry. I know every scar, bump, bruise, and speck on her little body. I know that she likes her hair played with when she is going to sleep and her feet rubbed when she is hurting. I know that she loves the color red and finds music/singing to be soothing. I can tell you when she is about to go into a seizure and I can just as quickly tell you if it is going to be very long or bad. So knowing all that I wasn't sure how I was going to hand her over without leaving my heart behind as well. We got to the center and it was nothing like I had anticipated. The people were great but their desire to do better could only take them so far. They have about 5 staff members for 35 kids in a space far smaller than
casa. They have no sheets for the beds so babies are laying on cold plastic mats. The place was dirty and smelled in a way that I can't even begin to describe. They have multiple other kids with disability that require a lot of attention already. I need you to hear me say ....the people really are great there. They are doing the best with what they have. I just doubt Izzy would have gotten picked up or loved on any time other than to be fed, bathed, or changed.
That situation lasted 5 days before they called saying she was having bad seizures and they couldn't get her to stop crying. Jen went to get her and decided that she just missed us because she calmed almost
immediately when she and Gina got there. She was scheduled for an appointment the next day anyways so they went ahead and brought her home with them. She hasn't quite made it back since then.....she has had a couple of doctors appointments and then we took her for a weekend get away.
This past weekend we took Izzy up North with the
Belpre group to do some work. They then were scheduled to fly out Sunday morning. The weekend went well and Sunday morning came with no problem. Around 7 a.m. Izzy started a bad seizure and wouldn't come out of it. Finally, around 7:45 I went to the front desk of the hotel we were staying at and had them call the ambulance. Within a few minutes they were there and I found myself sitting in the back of an ambulance holding my baby girl while they injected her with
Valium to make the seizure stop. The decision was made that it would be best if we were transported to the hospital so she could be stabilized. So before I knew it I was being
whisked away in the back of an ambulance. I've never even
ridden in the back of an ambulance in the states...yet there I was holding Izzy as we rushed to the hospital. They managed to
stabilize her and even though they weren't thrilled with the idea they let us go rather quickly. They left the IV in her arm and gave us a syringe full of
Valium to give her if she went into another no ending seizure. It was a long and crazy ride home. We finally made it and took her to a hospital here. Once her seizures seemed to be done and she seemed calm we were able to leave. The past 3 days she has done better. She is still having seizures but they are much much shorter and not nearly as severe. She is on about 6 different
meds and other things. She is eating nearly every two hours and still not gaining much weight.
If you are wondering how you can help. I first and foremost beg for your prayers. Prayers for her seizures. Prayers that she grows and gains strength by the day. If you are wanting to help in other ways you can donate to help with her medical bills. So far we have raised about half of the $4000 that her previous stays in the hospital cost. Her
meds cost about $150 a month and those of you who have been parents remember that pampers, baby food, and other
necessities are not cheap....especially down here. We will be setting up a
Paypal account on here soon for any of you who want to give that way or you can make checks out to
Stockport United Methodist Church with Isabel's name in the memo line and mail them to 3515 St. Rt 266
Stockport OH 43787.
She is and will continue to be my miracle baby. She has come so far already and has such a long road ahead. If you have questions I encourage you to post them on here and I'll do my best to answer them. She truly is amazing...I wish each of you could have a few days to meet her and get to know her. I promise you she would steal your heart.